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Cystic Fibrosis Awareness -...
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Cystic Fibrosis Awareness -...
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Cystic Fibrosis Awareness...
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...Cystic fibrosis (also known as CF, mucovoidosis, or mucoviscidosis) is an autosomal recessive genetic disorder known to be an inherited disease of the secretory glands, including the glands that make mucus and sweat. Read full entry
This entry is from Wikipedia,the leading user-contributed encyclopedia.It may not have been reviewed by professional editors(See full disclaimer)
- Cystic Fibrosis Living
- Information and Support for Those Caring for Someone with CF.
- www.CFLiving.com
- 1.Cystic Fibrosis Foundation
- Working to assure the development of the means to cure and control cystic fibrosis and to improve the quality of life for those with the disease.
- http://www.cff.org/
- 2.Cystic Fibrosis Foundation - ABOUT CYSTIC FIBROSIS
- Cystic fibrosis is an inherited chronic disease that ... few children with cystic fibrosis lived to attend elementary ... Testing for Cystic Fibrosis. ...
- http://www.cff.org/AboutCF/
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Cystic Fibrosis?
I posted question about there
being very little awareness as
far as Cystic Fibrosis is
concerned. Cystic Fibrosis is
1 of the top most lethal
diseases in the United States
2nd only to Diabeties. The
information I read on this
didnt state where Cancer
falls. My life has been
impacted by all 3 of theses
diseases. I have 2 neices with
type 1 Diabeties one of them
went undetected at birth which
caused her to go blind, deaf
and be mentally chalenged, my
father, his father, a brother,
and my sister Dee who also had
Cystic Fibrosis that caused
her to get type 2 Diabeties.I
had 2 grandparents who died
from cancer, and a sister who
had it. I dont think its fair
for 1 disease to get more
attention to others even if it
means saving the Titantic or 1
person on a row boat wouldnt
you want to save them all? I
have come in contact with MANY
KIDS with CF 2 of them being
my sisters Misty&Dee who have
both passed away. I want to
make people more aware. I have
a plan would you help? In
their memory.
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Roseykat, it is wonderful to do something in memory of your sisters. Check out the cff.org site and click on the link to local chapters to see where there is one near you. Be warned, as in any organization, it might be hard to just walk in the door and be accepted as someone who is serious about helping (sad to say), but go anyway. My daughter died almost five years ago and her old grade school just held "Sarah's Walk" this past Friday, which is a walk-a-thon held in her memory to raise money for the CF Foundation. They also give an award to a graduating student every year in her memory. This is odd. I just did a search for "Sarah's Walk" and found out that another school - hours and hours away from us - is also holding a "Sarah's Walk" to raise money for CF. This is for a different Sarah, but it's ironic that both "Sarah's Walks" are for the same cause. When our community built a new hospital, we donated the money to help equip the Pulmonary Function Test Lab and there is a sign stating that the room is in her memory. This doesn't promote CF awareness, but it does preserve her memory in an appropriate location. We continue to support the CF Foundation as well as the CF Center where Sarah was treated for her entire life, as they have active research projects. Maybe you could help raise some money to support CF research. What's your plan? |
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I have symptons of Cystic I am having a hard time
breathing and seem to have
attacks that come on all of a
sudden. Also I t feels like
something stuck in my lungs..I
cannot remeber any signs when
I was growing up. Is it
possible to start showing
signs of cystic fibrosis in my
30's?
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Yes, it is possible. Some of the previous answers are unbelieveable. No, you don't have to be diagnosed prior to 2 years old and NO you don't have to spend your teenager years in the hospital. Some of you are reading out of a 1950's medical journal. There are many different mutations with different manifestations. There are MANY different forms of CF and there are documented cases of people being diagnosed in their 30's, 40's, 50's , 60's etc... Good Look and I hope you find what is ailing you. |
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What is the average life I'm pregnant with my first
baby and I got some tests done
and the doctors informed me
that my daughter will have
Cystic Fibrosis. My mother had
a brother and sister who died
from the disease when they
were quite young. Anyway, I'm
wondering what is the current
life expectancy for
children/people with Cystic
Fibrosis and how can you best
take care of them to maximize
their life?
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more than 37 years old |
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