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  • 1.
    Craniosynostosis - Wikipedia, the free encyclopedia
  • The misdiagnosis of craniosynostosis as deformational plagiocephaly" ... Craniosynostosis in the Middle Pleistocene human Cranium 14 from the Sima de los ...
  • http://en.wikipedia.org/wiki/Craniosynostosis
  • 2.
    University Hospital San Antonio: Craniosynostosis
  • Facts on a minimally invasive craniosynostosis treatment using endoscopic assisted strip craniectomy, pioneered by Dr. David Jimenez and Dr. Constance Barone.
  • http://www.craniosynostosis.net/
Questions/Answers
Craniosynostosis?
Does anyone know where I can find a video of how the surgury procedure is done on a child with Craniosynostosis also known as Synostosis?
try youtube
Are there any risks to waitingto have surgery for Sagittalsynostosis craniosynostosis?
My daughter is almost 7 months old and they surgeons we met with can not get her into their schedule until 9months of age. Is there any risks to waiting this long? What about increased ICP? What about brain damage? What about brain growth and development?
You are the only advocate your child has. Is it possible that you could call other facilities and ask other doctors? Don't be afraid you're being a "pest". It's a parents job to be a pest! If any of these surgeons were in your position, they would do the same. Did you ask you childs' doctor the same questions? Have you checked out the Childrens Craniofacial Association? http://www.ccakids.com/ It appears that having the surgery done before the age of one year improves the outcome. So you've still got that bit of time on your side. But again, ask your doctor/surgeon about your daughters particular case and let them know you're concerned about waiting so long. Hope everything goes great for her! All the best!
Craniosynostosis? Does anyoneelse have a child with thisthat didnt have to havesurgery to correct it?
I am wondering if I need to get a second opinion on my daughters condition. Her doctor said that she wouldnt need surgery. She is now 8 and has pertruding forhead and some droopiness of her eyes. I think that she is to old for the surgery but I am unsure. I took the doctors word for it when he said she didnt need the surgery. But, now that she is older and I see it more, I am concerned that it will cause problems for her later in life socially.
Definately get a second opinion. I don't know how old a child can be and still have the surgery. Did the doctor ever mention using molds to shape her skull? Don't wait any longer about seeing another doctor. If something can be done it most likely will have to be done soon.
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